Throat Disease Eosinophilic Esophagitis (EoE) Affecting More Kids- Term life

Eosinophilic esophagitis (EoE) is a chronic allergic inflammatory disease of the esophagus. Cases have risen dramatically in the past 20 years, say doctors, and there remains no cure for the disease.

IT’S NOT FIBROMYALGIA- Term life

I stood in my closet this morning, looking around as though I’d never been there. I couldn’t remember what I was doing, why, or what I should do next. So I stood still, waiting for it to come to me. Moments before I had been violently panting like a wild animal, bent over in pain and hugging my own body. I’d simply gone upstairs to get dressed for the day, but just as it does every day of my life in varying degrees, my illness reminded me who was in charge.

Tears welled up. That happens a lot, too. I don’t always have words any more when I want to express what I’m feeling so my soul expresses it for me. I forget. A lot.

IT’S NOT FIBROMYALGIA

I was first diagnosed with Fibromyalgia in my early 30s by a young doctor who had clearly just learned the word on a sleepover at Junior Doctor Camp.

“You will grow weaker and weaker until finally your muscles atrophy. Your life span will be drastically shortened, and you’ll live out your final years wheelchair bound.”

Over the years I would experience sporadic periods of improvement and so I’d decided that Fibromyalgia was a bullshit diagnosis, and I damn sure didn’t have it.

Then I’d get really sick again.

MY SYMPTOMS

My arms and legs go numb, almost always both at the same time but sometimes not. Either way, I fall down, bump into things, lose my balance. I can’t always tell where my foot is hitting, and when that happens you would think that our floors are made of chewed up bubble gum.

My joints stiffen so severely that my ankles don’t want to bend and my elbows always feel like someone hit them with a hammer while I slept.

I move like Frankenstein, only not as gracefully.

My muscles ache down to the bone in a way that feels like I am always battling influenza. It never stops. Ever.

But, by far the worst thing I’ve been living with for so long is extreme fatigue. I’ve thought so often about what word I could possibly use to describe what it feels like, and I’ve always come up empty. All I can tell you is the kind of fatigue I live with every day is what I believe it must feel like to die. When it’s very bad, doctors notice a palsy that comes over my face, and I have trouble even standing. I can’t rest enough to recover. I say it’s like someone is embalming me.

That can happen whether I am sitting in a chair with my feet up, or it can happen after I’ve played with my grandmonkeys. It doesn’t matter what I do. It’s always there.

I’ve said to every doctor I’ve seen, “I know that I will not live much longer. I’m dying.” I’ve known that for a long time. In years past I’d have bursts of weeks or months of energy that would allow me to behave normally. But, I always knew I was dying. In the past three years I’ve really felt my life slipping away. There have been almost no bursts of energy or good days – just me waiting to go to sleep and not wake up.

I figured that in my autopsy results they’d discover what was really wrong with me and “the world” would know I wasn’t crazy. Well, at least as it pertains to my health.

Across decades I’ve been seen by new doctors, and with each came mounds of new medical bills. “You are presenting like you have MS,” they’d all say, and then after the same battery of tests came the same diagnosis.

Fibromyalgia and Chronic Fatigue Syndrome.

Fibromyalgia or toxic mold poisoning? - www.SherBailey.com

“I don’t believe that either of those is a diagnosis,” I’d say to them. “You are labeling me with those words because I am a woman, and because you don’t know what else to do with me.”

Want to piss off a doctor? Tell them you think they don’t know what they’re talking about. One particularly cocky son-of-a-bitch said to me, “You seem like you’d rather I’d have said you have MS.”

I know people who suffer unspeakably with Multiple Sclerosis. It’s vicious. But, yes. Sometimes I’d have taken the diagnosis of that horrific disease if only to have a “real thing” that explains why I so often can’t walk the ten feet from my recliner to the closest bathroom without holding onto something. People believe you when you say you have MS. They understand (as best they can), that you’re not well and that you’re not a liar who is seeking attention.

It’s not the same mindset with regard to Fibro and CFS.

I remember someone I deeply respect who suddenly made a proclamation on Facebook about women and Fibromyalgia. Go on a diet, get some exercise and grow up pretty much sums up the sentiment. There was no way I could tell people how sick I’ve been for fear they’d think of me as someone who wasn’t trying hard enough to be healthy, or worse, have them think it was all in my head.

Vapors or Fibromyalgia? What's the difference? www.SherBailey.com

Just to be sure, I went to see a psychiatrist. “Sher, you aren’t crazy. This isn’t in your head,” he said. To his credit he also said, “I could prescribe Lyrica for you, but if I do that it’s the same as saying I believe what you’ve been told about what’s going on and I don’t. You have to keep pushing until you get to the person who can help you.”

Well-meaning close friends and not so well-meaning relatives had more to say when I would take them into my confidence about how unwell I was. To be fair, there is only one person who knows how bad I am. Some people in my life know a little, and some a little more, but no one knows the extent of just how damn bad it’s been beyond my partner.

WHAT PEOPLE SAY TO ME

You need to cut out gluten. You need to cut out sugar. You need to push through it. You need to exercise. You should pray. You need to try harder to force yourself to do things that are uncomfortable. My friend knows someone who knows someone who has Fibromyalgia and they are living their life, not laying around letting it happen.

And the worst things that have been said? The things that I can’t get out of my head and that bring me to tears even as I write?

“Are you planning on being sick next month?”

“Seriously? Don’t tell me you’re sick again. Really? It’s funny how you’re sick when I need something from you.”

FINALLY, A DIAGNOSIS

An acquaintance dropped me a note one day that encouraged me to see a infectious disease doc here in the Midwest. A close family member of hers was made healthier by this man and she felt I should at least see him. It took months to get in, and I was profoundly skeptical.

The day came and I brought my partner with me to help me express what was happening, ask smart questions, and remember it all. When you lose your words and you forget things the way I do, you stop going to appointments alone. You stop going anywhere alone.

When he walked in, I knew right away something was different. He told me he was allowing two hours for our visit. I’d never had more than minutes with any doctor. He asked me questions about my current life, and my past. In many cases, before I could answer he’d tell me what he suspected my answer was going to be. He was always right.

He explained his research into Fibromyalgia and Chronic Fatigue Syndrome and how it had become his driving passion for many, many years. He spoke to us about his research, the two papers he’d published and the third on which he was currently working.

“I am 95% positive, Sher, that when we test your urine you will be positive for mycotoxins – black mold.”

In my life, no doctor has made such a bold statement. No physician of any kind had ever before been so confident to use such language BEFORE tests.

“It’s with good reason that you tell me you know you are dying. That’s exactly what is happening. The mycotoxins are killing you at a cellular level.”

And, then he said two little sentences that changed everything.

“I can help you. I will help you.”

I cried, and when at the end of our time together he got up to leave he opened his arms wide to me. “Around here, we give hugs.”

I came home and prayed that I’d be positive for black mold. There’s a prayer I never imagined.

When the tests came back, about two weeks, I received a copy of my results. There it was in black and white. Black mold. Mycotoxins. “You have a black mold factory living in your sinus cavity, Sher,” doctor said.

It could have begun as a very young girl in the South. It could have happened all the years I lived in Kentucky. It could have been in Germany. It definitely could have been made worse again by all the flooding and old homes in Southeast Kansas.

“You don’t have to be living in a home with black mold on the walls to have this happen to you,” he said.

That’s been several weeks ago now, and every day I take the treatment he’s prescribed. It amounts to inhaling a drug to kill the mold. There is no way to know how long it will take, but I don’t care. If it takes a year I’ll do it every day and wait for this to be over. The only side effects I’m currently having are that I’m so nauseous almost all the time now, and the fatigue has gotten even worse… if you can imagine such a thing.

I’m waiting on a call from his nurse right now about those things, but I’ve told myself the nausea is from the treatment running down my throat to my stomach. And the worsening fatigue? Well, I used to tell my babies that when your body is working hard to make you well, you have to rest because it takes so much energy for healing. There is a war inside my body now and I’m just going to have to do the best I can to wait it out.

At least we know what the hell this invisible, torturous monster is and there is hope now. I want to be healthy again. I want to take my grandmonkeys on outings. I want to run. I want to drink coffee in Portland, and sleep in a treehouse in New England, and drink great wine with friends in Chicago, and eat the best pizza in New York, and zipline in some place lush and warm. I want to be me again.

I have two incredibly loving and supportive children and a man in my corner who says things like, “I’d rather have life with you – even when you’re not well – than life without you. No question.”

Can’t quit now. I’m three feet from sunshine.

If you’re wondering about black mold poisoning, I’ll leave you with the following information:

BLACK MOLD SYMPTOMS

Please note that this is an exhaustive list. You do not have to have every single symptom to have a mold related illness.

  • Abdominal pain
  • Aches and pains
  • Aggression and other personality changes
  • Anxiety
  • Bleeding gums
  • Bleeding in the brain
  • Bleeding tendency
  • Blood not clotting properly
  • Blurry vision and vision worsening
  • Bone marrow disruption
  • Brain fog
  • Burning sensation in the mouth
  • Chest pain
  • Chronic fatigue
  • Cold or flu type symptoms or recurring colds
  • Coma
  • Confusion
  • Coughing
  • Crawling skin
  • Damage to heart
  • Death
  • Depression
  • Dermatitis
  • Diarrhea
  • Difficulty breathing
  • Difficulty concentrating and paying attention
  • Disorientation
  • Dizziness
  • Drowsiness
  • Eye damage
  • Eye inflammation and soreness
  • Fever
  • Hair loss
  • Hallucinations
  • Headaches
  • Hearing loss
  • Heart inflammation
  • Hemorrhage – internal bleeding
  • Immunosuppression
  • Impaired learning ability
  • Infections reoccurring
  • Irregular heartbeat
  • Itchy nose
  • Jaundice (yellowing of the eyes & skin)
  • Joint pain
  • Joint stiffness
  • Liver disease
  • Low blood pressure
  • Malaise
  • Memory loss and memory problems
  • Muscle pain
  • Nausea
  • Nose bleeds
  • Numbness
  • Pulmonary edema
  • Pulmonary hemorrhage
  • Red or bloodshot eyes
  • Runny nose
  • Seizure
  • Sexual dysfunction
  • Shaking
  • Shock
  • Shortened attention span
  • Slowed reflexes
  • Sore throat
  • Stuffy, blocked nose
  • Tingling
  • Trembling
  • Vomiting
  • Vomiting up blood
  • Weakness
  • Weight loss, anorexia
  • Wheezing
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An Advanced All-Natural Guide to Treating Crohn’s Disease and IBD-Term life

These days it seems like almost everyone has a problem with their stomach of some sort or another. Part of it is the food we eat, part of it is the nutrients we lack, and a lot of it has to do with stress.

But the first part is figuring out what exactly is going on with your digestion.



Is It IBS, IBD, Crohn’s, Ulcerative Colitis, or Something Else Entirely?

Stomach problems are often very difficult to diagnosis correctly because they tend to all have similar symptoms. Abdomen pain and cramps, loss of appetite, weight loss, fatigue, and diarrhea are all common in people with all sorts of different conditions.

Here are some general ideas to help you figure out what you have going on, though I would highly recommend also talking to your doctor.

Crohn’s Disease

Crohn’s is actually a form of Inflammatory Bowel Disease (IBD) and affects the walls of the small and large intestine, though it can also affect your mouth, stomach, rectum, and anus. It usually appears in patches and lesions and can affect the entire thickness of the bowel walls.



Crohn's 3

The symptoms vary a lot from person to person but often include: constipation or diarrhea (usually non-bloody), low-grade fevers, abdominal pain, loss of appetite, gas, bloating, fatigue, black stools, and weight loss.



A lot of factors can contribute to the development of Crohn’s disease from eating too many saturated fats, refined carbohydrates, and sugar to eating too few fruits and vegetables. Smoking, antibiotics, infections, stress and nutritional deficiencies can also all play a role.

Ulcerative Colitis

Ulcerative colitis is similar, but the damage is usually just in the large intestine and rectum, and affects only the innermost layer of the walls.

How to Help Control and Improve Your Symptoms

Because Crohn’s is caused by inflammation, the main idea to relieve symptoms is to somehow control that inflammation.

Diet

The First Thing You Can Do…

The first thing you need to do is to try to identify and remove any triggers. While people react differently to different foods, you should start with the most common food allergies.

allergy foods

Wheat

Eliminating wheat and all other grains containing gluten is a good place to start because they have been shown to increase inflammation and mess up your gut flora.

Dairy

Dairy contains antibiotics and hormones that can alter your gut flora and make them start inflaming your whole gastrointestinal tract.

Refined Sugar

Studies have shown that if you eat a lot of refined sugar, you are more likely to get IBD.

Carrageenan

Carrageenan is often used as a stabilizing agent in milk products. Animal studies have shown that eating too much of it can lead to ulcerative colitis. Studies in humans have yet to prove the same thing, but it could definitely be making the inflammation worse.

The Second Thing You Can Do…

The second thing you can do is start eating more fruits, vegetables, and dietary fiber. Brassica vegetables, onions, and garlic can all help to increase antioxidant levels and decrease inflammation.

Drinking plenty of water is also key to keeping your bowels healthy. Especially if you already drink coffee, you should make sure to drink at least 1-2 liters of water a day.

Supplements

Certain herbs are great for helping treat IBD because of their anti-inflammatory properties.

Turmeric

Turmeric has been used in cooking around the world for centuries. It contains curcumin, which has powerful anti-inflammatory properties. In particular it helps to fight cytokines, which cause inflammation, and modulates pathways which decrease inflammation.

turmeric

Studies have shown that giving curcumin to patients with Crohn’s and colitis can significantly improve their symptoms.

Quercetin

Quercetin is actually a bioflavonoid, which sounds complicated, but all you need to know is that it’s an antioxidant that can decrease inflammation by lowering the amount of histamine that your body releases. Plus, it can help slow down leukotrienes, which can make inflammation worse.

Quercetin can be taken as a supplement or you can simply eat more fruits and vegetables, especially citrus fruits.

Probiotics

Studies have shown that the yeast, Sacharomyces boulardii, is a very safe and effective treatment for patients with Crohn’s disease, helping decrease diarrhea, intestinal inflammation, and the risk of relapse.

Lactobacillus, another probiotic bacteria, has also been shown to be beneficial in Crohn’s patients, especially in children.

Stress

Stress is a major trigger for IBD attacks so you should pay special attention to your daily stress levels.

Yoga, meditation, setting boundaries, and making time for yourself are all great ideas for relieving stress. One of the best things I tell my patients is find whatever it is that you enjoy, that helps your body and your mind calm down, and invest time daily into that activity, even if only for a few minutes a day.

Nutritional

Crohn’s (and Colitis) tends to make your body worse at absorbing certain nutrients because of the damage it does to your intestines. People suffering from IBD can be deficient in any of the following nutrients:

– Vitamin B12

– Iron

– folate

– magnesium

– zinc

– potassium

– calcium

– Vitamin A, C, E, D, or K

If you suffer from IBD, speak to your health care provider to see which supplements may be best for you to increase your vitamin and mineral intake.

Please note: Inflammatory Bowel Disease (Crohn’s and Colitis) are very serious conditions. Please talk to your health care provider before taking any medications and supplements to see which may be the safest and best suited for you.

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